September 19, 2008

Jodi has had a couple of weeks of a lot of pain.  Much more than we had expected to have with this foot thing.  As a result, we have had to cancel her therapies and she does a lot of sleeping while she is on pain meds.  Our concern of course is that she will have difficulty coming off of the pain meds at a future date but at this point we have no choice but to help her get past this hard time.  On a pain scale of 0-10, she lingers somewhere between 5-9 all the time.  We cannot seem to get it below a 5 for any length of time.  We are almost relieved that the pain meds help her sleep a lot. Otherwise, she would not be able to get through this time.  We go to the Dr. tomorrow and we are hoping that he will say that it is time to stop stretching the back of the calve and the foot (something that I do each day when I twist the struts tighter on the halo around her leg), and start the six weeks of just keeping the foot in a place where it will not re-contract after the halo is removed.  During those six weeks, we are hoping that the pain will gradually subside and we can gradually take the pain meds down as well. 

 

We are missing a lot of special things during this stressful time such as relatives weddings, My brothers awards ceremony at WSU etc. but we have no choice.  It seems that life is passing us by but in reality, we are working through many aspects of real life every day.  We feel bad about missing special things but we make it to the most important which includes Aleq's  parent teacher conference, Ana Jain's Dr. appointment and the few things Jodi can participate in to be a mother.  Life goes on for us albeit slowly and sometimes tediously but we continue to be very hopeful and grateful to all of the support we receive from so many of you.  Connie